Parents want to give their child a fighting chance, to make sure every opportunity that awaits them can be discovered, and every step they will take in life is well-traveled.
For that reason, one Canadian family moved more than 1,500 miles, so their son could attend a special school in Phoenix. Their son’s condition so rare, he’s the only one in the world with it. There’s no name for the condition, and no real prognosis. Thanks to the Foundation for Blind Children, however, there is great hope.
Imagine a world almost completely void of sound. A world that lacks your favorite sights. That is Henry More’s world. The six-year old is a student at the Foundation for Blind Children.
“He’s considered deaf and blind, which is pretty rare,” said Henry’s mother, Taylor More. She says it’s also rare that Henry is participating and interacting with his classmates.
“We thought we were having another typical child,” said Taylor. “He passed every test, every screen. Definitely, he was just meant to be here.”
Henry was born in Vancouver, in Canada’s British Colombia province, and is Taylor and Jonathan More’s second son. Henry’s older brother, Harrison, was almost two years old when Henry was born.
“When he came out, he was small, he was purple,” said ___. “They couldn’t get him breathing for a really long time. Nobody knew what was wrong.”
“The problem with Henry is that he’s the only one in the world with his condition, or his chromosome deletion,” said Jonathan.
The rare chromosome deletion meant his parents had no idea what was in store for Henry. His first year of life was spent in and out of the hospital. A year after that, the family went to Phoenix, and toured the Foundation.
“It was at that moment in the car that we decided that we are going to be moving from Vancouver, Canada to Phoenix, taking everything and relocating, so Henry could attend Foundation for Blind Children,” said Jonathan.